Tyson's Story
Tyson
Tyson is from Speedway Indiana and was a very energetic kiddo involved in various sports including basketball, football, baseball and wrestling. As he grew older, around 6th grade, we began to notice issues with Tyson's coordination, balance, and fine motor skills.
In early 2025, after many years of uncertainty, doctor's visits, scans, and tests, Tyson was diagnosed with Friedreich's Ataxia (FA). We finally received a diagnosis to align with his symptoms, but now Tyson faces the reality of living with and adapting to the disease.
FA is a rare genetic progressive neuromuscular disease. Symptoms include issues with balance, life-altering loss of mobility, fatigue, serious heart conditions, scoliosis, muscle weakness, loss of hearing and loss of eyesight. FA affects an estimated 5,000 people in the US and only 15,000 worldwide.
Why We Golf
Our Mission is to raise funds to help Tyson live independently with FA. He is learning new life skills every day and working hard to keep his strength while fighting this disease. You can find his videos representing strength and courage on TikTok, as he continues to fight and bring awareness to FA.
Our golf fundraiser helps to assist with Tyson's mobility needs, independent college living needs, physical therapy, prescriptions, medical needs, ADA accessibility, ADA adaptive tools, special driving lessons with hand controls, laundry/housekeeping assistance in college and accommodations for upcoming clinical trials.
Tyson's needs will be everchanging and he will require lifelong assistance while living with FA - until we find a cure.
A portion of our annual proceeds is donated to FARA to research and find a cure for FA.
Tyson's Tribe
Tyson has a huge tribe of family and friends behind him who provide a tremendous amount of support. We couldn't be more grateful for everyone who helps with doctor appointments, transportation, adaptability home improvements, and much more.
We are truly blessed with the best people in our lives.